Resources

Family Caregiver Communication Tool

Family can be your partner and/or children. Family can also be the family you were born into, like your parents/guardians and brothers and sisters. As primary caregiver for your loved one, think about the family that is connected to you and your loved one (patient).

1. I talk with my family, which can include online and text messages, about my loved one’s illness.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

2. After a medical appointment, I contact family members to share details of the visit.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

3. Family members ask me about my loved one’s illness.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

4. My family talks about death and dying with our ill loved one.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

5. My family talks about what might happen if treatment doesn’t work.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

6. My family lets me know that they expect me to take care of my loved one and that I am to do most of the caregiving.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

7. When I am stressed from caregiving, I prefer to hide this from family members.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

8. My family hides their opinion about the quality of my caregiving.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

9. My family tries to act as though my loved one is not ill.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)

10. My ill loved one lets me know that he/she expects me to provide care and do most of the caregiving.


Frequently (4)         Occasionally (3)         Rarely (2)         Very rarely (1)         Never (0)